Action Mesothelioma Day 2nd July 2010

Asbestos Victims Support Groups Forum UK
 donated a fantastic total of £16,920.54!

Vera Rigby and Ann Oldham with fellow members of the Greater Manchester Asbestos Victims Support Group, donate a total of £10,070 towards the Mick Knighton and June Hancock Mesothelioma Research Funds

Cheshire Asbestos Victims Support Group: £1,250.00
Greater Manchester Asbestos Victims Support Group: £5,035.50
Merseyside Asbestos Support Group: £1,500.00
Sheffield & Rotherham Asbestos group: £700.00
Hampshire Asbestos Support and Awareness Group: £7,500.00
Thank you all for your generous support.
 
This year, the British Lung Foundation (BLF) focused on the dangers of asbestos in the home.  Nearly 47% of homeowners do not realise that asbestos was used as a building material in homes as recently as the 1990s.The BLF urged people doing DIY to be Asbestos aware after a survey of 2,000 homeowners revealed that nearly two thirds are not confident in identifying material containing asbestos in the home.
Typically asbestos can be found in materials such as floor tiles, toilet cisterns, textured ceiling coatings and linings of boiler cupboards.
As nearly fourteen million homes were built when asbestos materials were being used in conscruction. 
 
Having asbestos knowledge could help to prevent them developing mesothelioma between 15 – 50 years later
.
The British Lung Foundation has teamed up with DIY and TV presenter Craig Philips,winner of Big brother 1 to promote their Action Mesothelioma Day campaign.The campaign is particularly close to his heart as his uncle has been affected by asbestos.
Asbestos Victims Support Groups across the country, held events and activities to mark the day. 
 
The Mick Knighton Mesothelioma Research Fund held a mesothelioma conference at Gateshead Civic Centre, linking together people affected by the disease, along with health and legal professionals  and Health and Safety representatives.
Gateshead Civic Chambers

Gateshead Civic Chambers

 The conference focused on Palliative Care along with the need for a National Centre for Asbestos Disease.

The day was Chaired by Dr Neil Leitch, Consultant in Respiratory Medicine, based at the University Hospital of North Tees. 
 Dr Leitch has been Chairperson of the North of England Cancer Network Lung Cancer tumour group since 2008 bringing together clinicians from across the region and helping to drive forward developments and the highest standards of care in all parts of the Northern Region.
The Mayor of Gateshead, Councillor Michael Hood, gave delegates a Civic welcome and vowed to raise awareness of  dangers of asbestos and support the work of the Research Fund across the region.
Geoff Wind a mesothelioma sufferer, then spoke about living with mesothelioma.  Geoff’s talk was realistic and down to earth but also amusing and raised  a few  laughs from his audience.
Left to Right Geoff Wind, Ian Mearns MP,              ,Ian McFall, Chris Knighton,Dr Paes and Dr Neil Leitch

Left to Right Geoff Wind, Ian Mearns MP, ,Ian McFall, Chris Knighton,Dr Paes and Dr Neil Leitch

Ian Mearns MP for Gateshead, promised to help mesothelioma victims both in and out Parliament .While Penny Borgen, Community Lung Cancer Nurse for South Tyneside, gave an interesting talk on the North of England Cancer Network, in relation to mesothelioma patients in individual hospitals in the area.

 Dr Paul Paes, Consultant and Senior Lecturer in Palliative Care, explained how Advance Care Planning can help achieve goals and address possible fears.

Those affected by the disease, were able to ask the experts on matters that affected them. 

Dr. Paul Cook. Role of Cordotomy in Mesothelioma

Dr. Paul Cook. Role of Cordotomy in Mesothelioma

 Dr Paul Cook,Consultant in Palliative Care, Oldham, Medical Director, Dr Kershaw’s Hospice, Oldham spoke of  the Role of Cordotomy Service in Mesothelioma

 Paul came into Palliative Medicine, via Anaesthesia and Chronic Pain work. Interventional Cancer pain treatments has always  been of great  interest to him.

His talk was of great interest to delegates as he  gave details on a cervical cordotomy service at the Royal Oldham Hospital, for patients with one sided uncontrolled cancer pain, mainly for mesothelioma and lung cancer patients.  To date, this service has treated patients from across the North West, Yorkshire and Leicestershire.

 He  advised the Department of Health on rolling out cordotomy for mesothelioma and co-ordinated the setting up a national network of cordotomy centres across the UK.  The aim is to allow easier access to these services for patients with mesothelioma.

There are four Cordotomy Centres across the country, further information and contact details can be found on Specialist  Pain Relief Service to help Mesothelioma Patients page.

Dr Sam Janes recipient of the 2009 MKMRF Award into Treating Mesothelioma by Stem Cells gave hope for the future.  

The study has shown that MSC (stem cells) can destroy malignant pleural mesothelioma cancer cells. They can then  be sent to lung cancer and destroy the cancer cells. In all cases cancer growth was reduced and in 40% cancers were eliminated.

He will now examine how widely effective this new therapy is and whether it can be improved by combining it with existing chemotherapy drugs.

If these experiments are successful, this treatment could easily be delivered to patients in the future.

Professor Ruth Plummer, MKMRF Patron and Clinical Director at the Bobby Robson Cancer Centre.

Brought us  upto date on currrent clinical trials at the Northern Centre for Cancer Research in relation to asbestos related disease and mesothelioma.

Ian McFall, Head of the Asbestos Litigation Department at Thompsons Solicitors, gave an inspiring talk, on the complex subject of Compensation and Benefits in Mesothelioma

Natalie Doyle, Nurse Consultant in Cancer Rehabiliation at the Royal Marsden, brought the day to a close,  with her presentation on Living With Mesothelioma.

.Natalie explained, Living With is,  not the same as being alive with.

An illness such as mesothelioma, affects not only the person  sufferring from the disease but extends throughout the family,as well as to friends and colleagues

By adjusting to life’s constant readjustments and becoming the Chief Executive of YOU Ltd.  Recruiting family, friends, doctors, nurses, comlimentary therapists, support groups and anyone who looks remotley willing, life can become so much more positive.

It was an excellent message, delivered in an amusing way, for everyone to take home with them.

Natalie Doyle

Natalie Doyle

Grateful thanks to, Gateshead Civic Centre and to Thompsons Solicitors for sponsoring the event.